Summer 2021 Update
See what we’ve been up to so far in 2021.
Get Details »
In the Media: TV
In the Media: Print & Online
- The power of patients and families (WCVB TV – Chronicle)
- Runners Race Closer to a Cure for CMT4J (WHDH)
- How Far Would You Go to Save Your Little Girl? (Boston Magazine)
- Massachusetts Mom Convinces Scientists to Find Potential Cure for Daughter’s Rare Disease: ‘Anything Is Possible’ (People)
- Jocelyn Duff honored by Science Channel (Boston Globe)
- Science Channel’s ‘Science Super Heroes” Initiative Recognizes Jocelyn Duff as June 2017 Honoree (also watch the video)
- Miracles from Maine (Lewiston-Auburn Sun Journal)
- Talia’s Story (WHDH – 7 News)
- How We Make Our Own Hope Amidst an Ultra-Rare Charcot-Marie-Tooth Diagnosis (The Mighty)
- Their child struck by a rare disease, an Ipswich family fights back (Boston Globe)
- Family fights to find cure for daughter’s rare disease (WCVB TV)
- With no time to lose, parents drive CMT4J gene therapy forward (BCH’s Vector Blog)
- Jackson Lab Helping 11-Year-Old With Rare Disease In Search For Cure (Hartford Courant)
- Interiew with Cure CMT4J’s Jocelyn Duff (Rare Disease Report)
- Mom on a Mission: Jocelyn Duff of the Talia Duff Foundation (Macaroni Kid)
- Race for cure continues for Ipswich girl (Ipswich Chronicle)
- A Driving Force: The Duff Family’s Fight for a Cure (Ipswich Neighbors)
- Ipswich family fights time to find cure (Ipswich Chronicle)
- First Day of Vacation Spent Fundraising For Classmate (theLocalNe.ws)
Check out our blog:
Fall 2022 Update
We hope you had a restful Summer full of adventures and reconnecting with friends and family. At CureCMT4J we continue to push toward treatments for CMT4J, despite roadblocks and the repercussions from a global pandemic. In the wake of Covid, a down-turning economy,...
Summer 2021 Update
Throughout the many shut-downs of the pandemic, we have continued to work toward treatments for CMT4J. Our researchers and scientists have shown incredible grit in persevering through immeasurable delays and roadblocks. And while thousands of dedicated folks worked on...
Fall/Winter 2020 Update
This year has been like no other. A “perfect storm” of an unrelenting worldwide pandemic coupled with deep-seated division and unrest here in the U.S. And just as Covid began to spread across our country, Talia’s CMT4J decided to progress further, making it even more...
Spring 2020 Update
We are thrilled to announce our collaboration and sponsored research with The Meisler Lab at the University of Michigan!
Dear Supporters
This is a one-in-a-million community supporting a one-in-a-million cause.
People Magazine Features Talia’s Story and Cure CMT4J’s Efforts
People Magazine has placed a national spotlight on our fight to Cure CMT4J with a wonderful story and a very compelling video capturing Talia’s journey.
Reflections on Fatherhood
I knew pretty early on that I wasn’t destined to be the World’s Greatest Dad. But there are moments in my parenting career that will stick with me forever I think. Not because I particularly shine, but because they strike me as moments when my role as a father and my thinking about parenthood changed.
On Mother’s Day
Is this not our greatest wish for all of our children, and even for ourselves: To have a sense of self so true and bold that we can cry out, “I love myself, World!”
Talia’s Story on Channel 7
Boston’s Channel 7 News covered Talia’s fight against CMT4J in a story that aired on April 28 … watch it below and be sure to share this page!
