Fall/Winter 2020 Update

See what we’ve been up to during this year like no other.
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In the Media: TV

Fall/Winter 2020 Update

This year has been like no other. A “perfect storm” of an unrelenting worldwide pandemic coupled with deep-seated division and unrest here in the U.S. And just as Covid began to spread across our country, Talia’s CMT4J decided to progress further, making it even more...

Spring 2020 Update

Spring 2020 Update

We are thrilled to announce our collaboration and sponsored research with The Meisler Lab at the University of Michigan!

Dear Supporters

Dear Supporters

This is a one-in-a-million community supporting a one-in-a-million cause.

Reflections on Fatherhood

Reflections on Fatherhood

I knew pretty early on that I wasn’t destined to be the World’s Greatest Dad. But there are moments in my parenting career that will stick with me forever I think. Not because I particularly shine, but because they strike me as moments when my role as a father and my thinking about parenthood changed.

On Mother’s Day

On Mother’s Day

Is this not our greatest wish for all of our children, and even for ourselves: To have a sense of self so true and bold that we can cry out, “I love myself, World!”

Talia’s Story on Channel 7

Talia’s Story on Channel 7

Boston’s Channel 7 News covered Talia’s fight against CMT4J in a story that aired on April 28 … watch it below and be sure to share this page!

From Diagnosis to Hope

From Diagnosis to Hope

Jakeb’s CMT4J is starting to progress rapidly. His hands ache all the time. Sometimes he has a hard time breathing. Leg braces help, but he still struggles to climb stairs or walk longer distances without tiring.