Spring 2020 Update

We are thrilled to announce our collaboration and sponsored research with The Meisler Lab at the University of Michigan!
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The Meisler Lab Team

In the Media: TV

Spring 2020 Update

Spring 2020 Update

We are thrilled to announce our collaboration and sponsored research with The Meisler Lab at the University of Michigan!

Dear Supporters

Dear Supporters

This is a one-in-a-million community supporting a one-in-a-million cause.

Reflections on Fatherhood

Reflections on Fatherhood

I knew pretty early on that I wasn’t destined to be the World’s Greatest Dad. But there are moments in my parenting career that will stick with me forever I think. Not because I particularly shine, but because they strike me as moments when my role as a father and my thinking about parenthood changed.

On Mother’s Day

On Mother’s Day

Is this not our greatest wish for all of our children, and even for ourselves: To have a sense of self so true and bold that we can cry out, “I love myself, World!”

Talia’s Story on Channel 7

Talia’s Story on Channel 7

Boston’s Channel 7 News covered Talia’s fight against CMT4J in a story that aired on April 28 … watch it below and be sure to share this page!

From Diagnosis to Hope

From Diagnosis to Hope

Jakeb’s CMT4J is starting to progress rapidly. His hands ache all the time. Sometimes he has a hard time breathing. Leg braces help, but he still struggles to climb stairs or walk longer distances without tiring.

The Magic Quarter

The Magic Quarter

These are some of the ways my daughter Talia is funny. If you meet her sometime, maybe you’ll agree. But you have to kinda spend some time with her and she’s gotta have time to figure you out. But then she can be pretty funny. Trust me.