I knew pretty early on that I wasn’t destined to be the World’s Greatest Dad. But there are moments in my parenting career that will stick with me forever I think. Not because I particularly shine, but because they strike me as moments when my role as a father and my thinking about parenthood changed.
Is this not our greatest wish for all of our children, and even for ourselves: To have a sense of self so true and bold that we can cry out, “I love myself, World!”
Boston’s Channel 7 News covered Talia’s fight against CMT4J in a story that aired on April 28 … watch it below and be sure to share this page!
We are on target with our pre-clinical work at Jackson Labs in Maine. CureCMT4J funded the creation and production of the viral vector to be used in mice this April/May.
Jakeb’s CMT4J is starting to progress rapidly. His hands ache all the time. Sometimes he has a hard time breathing. Leg braces help, but he still struggles to climb stairs or walk longer distances without tiring.
These are some of the ways my daughter Talia is funny. If you meet her sometime, maybe you’ll agree. But you have to kinda spend some time with her and she’s gotta have time to figure you out. But then she can be pretty funny. Trust me.
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