We are thrilled to announce our collaboration and sponsored research with The Meisler Lab at the University of Michigan!
This is a one-in-a-million community supporting a one-in-a-million cause.
People Magazine has placed a national spotlight on our fight to Cure CMT4J with a wonderful story and a very compelling video capturing Talia’s journey.
I knew pretty early on that I wasn’t destined to be the World’s Greatest Dad. But there are moments in my parenting career that will stick with me forever I think. Not because I particularly shine, but because they strike me as moments when my role as a father and my thinking about parenthood changed.
Is this not our greatest wish for all of our children, and even for ourselves: To have a sense of self so true and bold that we can cry out, “I love myself, World!”
Boston’s Channel 7 News covered Talia’s fight against CMT4J in a story that aired on April 28 … watch it below and be sure to share this page!